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Jo Goode speaks at Rare Disease UK meeting

Myositis UK Trustee Jo Goode spoke at Rare Disease UK's launch of the Patient Experience of Rare Disease Report in January. Jo was featured in the report and spoke about her experience with Dermatomyositis and highlighted issues for those with Myositis. The audience included patient organisations, representatives from the NHS around the UK, doctors & MP's. http://www.raredisease.org.uk/documents/patient-experiences-2015.pdf

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