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Support Us – Fundraise, Events & Donations

Your Fundraising

If you are raising funds for Myositis UK then you are part of Team Muscle!

We can support you by providing collection boxes, flyers, t-shirts, balloons, posters and if near to Southampton we can loan our large banners too.

The charity is registered with both Just Giving and Virgin Money Giving so you can set up your fundraising page with either of these sites.

We can help promote your event on our Team Muscle Facebook Page, Like the Facebook Page and message us some details and we will shout out for you!

Snowdonia Marathon

When Howard's niece Niamh was diagnosed with JDM, he wanted to show his support by completing the Snowdonia Marathon to raise funds for research performed by the Juvenile Dermatomyositis Research Group (JDMRG).

Howard says, "Juvenile Dermatomyositis is a disease with no cure and affects 3 in a million children and Myositis UK and the JDMRG have been invaluable to my sister. Despite being one of the toughest marathons I should still get around Snowdonia quicker than one of Niamh's hospital trips!"

» Visit Howard's Just Giving Page

Head Shave

When Olivia's sister-in-law (and best friend) Kate became ill over a year ago, hospitalized to intensive care and a diagnosis of Dermatomyositis she decided to raise money to help. Part of Kate's treatment involved medicines that caused her to lose her hair so in a drastic comradeship she chose to shave her head. Olivia had beautiful long hair, it has been her pride and joy and a safety blanket for a long time. Friends and family sponsored this fundraiser and over £2100 was raised.

Olivia says "this is an awesome charity, which supports people like Kate and those around them. Dermatomyositis is very rare, making Kate truly one in a million!"

» Visit Olivia's Just Giving Page

Bath Half Marathon

Stefanie Patrick gave herself just 3 months to train for the Bath Half Marathon. With a back injury she completed her challenge and raised over her target.

Stefanie says, "The charity is not very well known as Myositis is a very rare muscle condition, however it is very close to mine and my family's hearts. My mum was diagnosed with Dermatomyositis which is an auto immune disease and I've seen how much this charity has helped and supported her over the years."

» Visit Stefanie's Just Giving Page

British 10K

The British 10K London Run, a real wow factor run takes place on Sunday 13th July 2014. There are 5 places available and the charity is looking for runners.

» If you would like to run the British 10K London Run for Myositis UK please click here for further details

London Marathon 2014

Running in the London Marathon for Myositis this year are Marc Smith, Martin Stanley, Wilfred Birch, Stephen Cahill, Scott Carey, Claire Kelly-Forrest, John Boote and Frank Littler. You can read their stories the Your Fundraising Page. If you would like to sponsor and help raise funds Myositis UK members were sent Sponsorship Forms in the Spring flyer and some of these runners have Just Giving or Virgin Money Giving pages.

» If you would like to run the London Marathon in 2015 for Myositis UK please click here for further details

Wilfred Birch

"This year I am running on behalf of the Myositis UK. This charity supports amongst other diseases the one my wife Erika suffers, which is Polymyositis. Erika developed this disease 14 years ago. This was a life changing event for her as she became immobile within 4 days and it then took another week for doctors to diagnose the problem. During that week she almost died due to major swelling of all muscles in her body including her heart and lungs. Since then with the tremendous support of doctors, specialists and Myositis UK, Erika has had her ups and downs but at the moment she is stable."

» Visit Wilf's fundraising Page

Scott Carey

"This year I am running on behalf of the charity Myositis UK. This charity supports amongst other diseases Polymyositis which my friend's wife suffers from. This is a very rare disease. Both myself, Wilf Birch and Bob Boote are all running for Myositis UK in a concerted effort to raise as much money as possible for such a worthwhile cause that has affected the life of Wilf's wife. I am currently training a lot and am actually running the Barcelona marathon Sunday 16th March in preparation for the London Marathon."

» Visit Scott's fundraising Page

Marc Smith

"In April this year I will be running the London Marathon. I am not a professional runner nor am I experienced in running such a distance, I am however determined to run the marathon to raise money for a charity that is very close to my heart and means a great deal to my family. In December 2011, after a very harrowing 6 months of illness, my then 2 year old nephew Henri was diagnosed with Juvenile Dermatomyositis (JDM), an autoimmune disease that is incredibly rare and only effects approximately 3 children in every million per year. Muscle weakness and skin rashes are the main symptoms but it effects every child differently with some children experiencing a mild form whilst others, like Henri, often displaying a more severe progression. Henri stopped walking properly and suffered great discomfort just carrying out his normal day to day activities."

» Visit Marc's fundraising Page

Martin Stanley



» Visit Martin's fundraising Page

 

Evesham Festive 10K

The first exclusive run for Myositis is being held in Evesham. The Myositis Evesham Festive 10K will be on Sunday 20th December. This is a scenic Worcestershire off road run starting at Evesham United FC and is being organised by Paul Evans who had JDM as a child and is currently in training for the London Marathon 2016. Proceeds of this run will be going towards Paul's London Marathon fundraising for Myositis UK.

The event is open for entries and there will be a bespoke medal and goodies for all completing runners. Entries online at: http://www.entrycentral.com/myositis10k If you are in the area on the 20th December pop along and cheer on the participants! We hope to be there with a Myositis UK stall (weather permitting), so, come and say hi.

Paul writes,
"Outside of my family, not a lot of people know that when I was 9, I suffered with severe muscle weakness, which affected my ability to carry out simple tasks such as opening doors as well as taking part in sports and other physical activities. This significantly affected my confidence and caused a lot of discomfort.

Thanks to the amazing support of my aunt Tricia and my parents Bev and Richard, I saw a specialist and was diagnosed with Juvenile Dermatomyositis, a rare condition where the immune system attacks blood vessels throughout the body, causing these symptoms.

I went on to receive excellent treatment at Hammersmith Hospital in London and eventually made a full recovery around the age of 16, with no lasting effects. During this, my parents also received some great support from Myositis UK. The London Marathon is an amazing event I would love to be able to take part in and with my own personal experience with Dermatomyositis, Myositis UK means more to me than any other charity and I’d love the chance to raise a large amount of money for the charity as well spreading awareness of the charity and condition.

I also would love to be able to show others that are suffering with Dermatomyositis that there is hope of making a full recovery and leading a fit and active life.

I was very lucky; of the children diagnosed with and treated for Juvenile Dermatomyositis, only about half will recover completely. Close to 30 percent will be left with muscle weakness. Please help me raise money for the charity to further research and help support those suffering with the illness."

Read more on Paul's fundraising facebook page https://www.facebook.com/paulmyositis/?fref=ts
Visit Paul's London Marathon Just Giving Page https://www.justgiving.com/paul3vanz/

Follow this and all our fundraisers on our Team Muscle Facebook Page. https://www.facebook.com/MyositisSupportGroup/
If you would like to hold a fundraiser for Myositis UK please contact us.

Diane White to the Moon & Back Foundation - Coast to Coast Cycle Ride

Tony White set up the Diane White to the Moon and Back Foundation in memory of his wife Diane (IBM) which raises funds for IBM research supported by Myositis UK. Graham Chadwick a close friend is cycling the Coast to Coast Cycle Ride in August under the umbrella of the foundation to raise money for Myositis UK.

Graham Chadwick writes,
"Just over two years ago Diane White a very close family friend and God Mum to my son was taken through this awful illness. Which if I’m going to be honest I had never heard of until Diane was diagnosed in 2014, Tony, Diane’s husband has set up the "Diane White to the Moon & Back Foundation” to raise funding for Myositis UK research and increase awareness of Myositis. As friends do I try and do my little bit to help, so this year in August I’m cycling the coast to coast route, 140 miles from Working to Sunderland via the Lake District and North Yorkshire, as I’m not a cyclist or young, learn and fit this will be a challenge for me, but on the plus side training is going really well.

My fundraising/sponsorship is going really well, I have targeted £1000 and currently stand a shade in front of my target, however I want to push the fundraising further. Therefore I’m hopeful that a few of your site users; people who have an understanding of Myositis and just how desperate funding for research is might take sympathy on a foolish overweight mid fifty’s man and his bike riding 140 miles up and down those picture perfect hills and sponsor me."

You can sponsor and read more on Grahams Just Giving Page.
» https://www.justgiving.com/fundraising/Graham-Chadwick

You can also shout out to Graham on our Team Muscle Page to wish him well: » https://www.facebook.com/events/1123492514354785/

London Marathon 2016

Congratulations to Paul Evans, Laura Oakley, David Bliss, Ciaran O'Connell, Scott Medlock and Catherine Mann who all successfully completed the 2016 London Marathon as part of Team Muscle, raising over £10,000.

 

FRSB Myositis UK has made a Fundraising Promise
commissioned by the Fundraising Standards Board to ensure
its fundraising activities are open and fair.