WELCOME TO MYOSITIS UK

FIGHTING MUSCLE DISEASE

WE PROVIDE INFORMATION TO THOSE AFFECTED BY MYOSITIS AND FUND RESEARCH TO IMPROVE DIAGNOSIS AND TREATMENT.

Recently diagnosed

If you, or someone close to you, has been diagnosed with a form of myositis, we’ve got information to help.

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What is myositis?

Myositis is a rare autoimmune disease that causes muscle weakness. Find out more about the different types.

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Latest research

Myositis UK funds and promotes research to help improve diagnosis, treatment, management and understanding of myositis.

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Ways to support

FUNDRAISE

From sponsored silences to challenge runs, join Team Muscle and start fundraising for Myositis UK.

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GIVE

From one off donations to payroll giving, find out how you can give to Myositis UK and support those affected by myositis.

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What's new?

Latest newsletter

Read about all the latest Myositis UK news in our Spring 2025 newsletter.

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Research grants

Find out about our current research grants and opportunities.

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Read the latest news from our blog

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients

12 February 2025

A study recently published in the Lancet has revealed that blood tests can predict the severity of Covid-19 infection in Rare Autoimmune Rheumatic Disease (RAIRD) patients, which could lead to individualised approaches to vaccination. The...

Three research projects awarded funding from Myositis UK

30 August 2024

In 2023, Myositis UK adopted a new process for reviewing grant applications to decide which research projects to fund in the field of myositis. We awarded four projects using this process in 2023 and are...

Myositis clinical trial opportunities

06 January 2024

Members of Myositis UK living with myositis have been invited to find out more about taking part in two active clinical trials/studies. VALOR Study The VALOR Study is a clinical study sponsored by Priovant Therapeutics...

Team Muscle gallery

Three runners with their London Marathon medals.

What we do

Myositis UK is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment.

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Membership info

Myositis UK is a membership organisation. Membership is free but only available to UK residents. If you are overseas or would prefer to just receive our email mailings, you are welcome to join our email mailing list.

More about membership