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Information // Juvenile Dermatomyositis

Myositis UK Literature


Useful information from other organisations

Juvenile Dermatomyositis Research Group
Juvenile Dermatomyositis Research Group

Website includes information on JDM, JDRG centres, details about research and collaborations and a page for patients and parents.

Web: http://www.juveniledermatomyositis.org.uk


Muscular Dystropy Campaign
Muscular Dystropy Campaign

Juvenile Dermatomyositis is a neuromuscular disease and one of the many muscle illnesses under the umbrella of the Muscular Dystophy Campaign. Unlike the muscular dystrophies JDM is not genetic. The MDC website has a JDM leaflet as well as other information that parents may find useful.

Web: http://www.muscular-dystrophy.org/


Contact A Family
Contact A Family

Contact A Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. With over 30 years of experience, our vision is that families with disabled children are empowered to live the lives they want and achieve their full potential, for themselves, for the communities they live in, and for society. It's why we offer support, information and advice to over 340,000 families each year and campaign for families to receive a better deal. Their extensive website is full of information and includes a very useful Medical Words Glossary and advice on finding reliable information online and explanation on Benefits and Tax Credits

Web: http://www.cafamily.org.uk


CureJM Foundation
CureJM Foundation

An American organisation with an extensive website containing useful information and details of their Myositis And You book.

Web: http://www.curejm.org


Myositis Association
Myositis Association

An American organisation for all Myositis including JDM. Extensive website includes information for parents, families and teens and a community area including live podcasts.

Web: http://www.myositis.org


Know of a useful organisation that should be listed here? Please email us so we can update the page.

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