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Meetings // JDRG-MUK

The Juvenile Dermatomyositis Research Group – Myositis UK meeting is an annual face to face meeting for each parties to update on their work and to ensure continuation of the working relationship. Professor Lucy Wedderburn (GOSH), Dr Clarissa Pilkington (GOSH), Dr # (Glasgow), Dr # (#) and Katie # (GOSH) met with Irene and Les Oakley, Paula Jordan and Nichola Coleman. An update on the Research Repository, the JDRG network of doctors, and the JDRG website was given, access to Teddy-Bo Book and Bear in clinic was discussed as was future parent fundraising and research projects. The next meeting is planned for October 2014 at the Institute of Child Health (GOSH).

FRSB Myositis UK has made a Fundraising Promise
commissioned by the Fundraising Standards Board to ensure
its fundraising activities are open and fair.