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Information // Social Media

If you use social media then this is a simple way to connect with others. We currently have four Facebook Pages; Myositis UK, Team Muscle, Juvenile Dermatomyositis, and Teddy-Bo his friends, adventures and juvenile dermatomyositis.

Myositis UK
Juvenile Dermatomyositis Research Group

Myositis UK is the official charity Page on Facebook. It allows the charity Myositis UK to post messages in real-time and re-post suitable messages from other organisations. It acts as the hub for the other 3 Facebook Pages and is administered by Paula Jordan (Trustee) and Jo Good (Treasurer)

Team Muscle
Juvenile Dermatomyositis Research Group

Team Muscle Facebook Page is for anyone fundraising or supporting fundraising for Myositis UK. It is a great way to promote your event, share your Fundraising Page (Just Giving or Virgin Money Giving) , upload photos or updates and for supporters to see your event. Initially set-up for the charities Gold Bond London Marathon runners this Page is now for all fundraisers whatever your activities are. Paula Jordan (Trustee) and Jo Good (Treasurer) administer this Page.

Juvenile Dermatomyositis
Juvenile Dermatomyositis Research Group

Juvenile Dermatomyositis Facebook Page was initially set-up by Nikki Coleman (JDM mum and Trustee) to raise funds for JDM but has evolved as a great Page for JDM interaction. Now co-administered with Paula Jordan (JDM and Trustee) they Post information that may help JDM parents ranging from news from Myositis UK to re-tweets from other organisations.

Juvenile Dermatomyositis Research Group

Teddy-Bo his friends, adventures and juvenile dermatomyositis Facebook Page is administered by Paula Jordan and Nikki Coleman. This Page allows anyone to follow Teddy-Bo on his adventures as he meets his friends and raises awareness of the inflammatory muscle disease. A distinct Page from JDM was set-up to allow followers to just follow Teddy-Bo. The Page is for your photos and stories so where-ever you and Teddy-Bo are snap it and Post on the Page.

Other Social Media

If you administer a Facebook Page, write a Blog or Tweet and would like it listed here please send us brief details and a photo. Please note Myositis UK cannot be held responsible for any content, advice, comments given by external sources.

Myositis UK has made a Fundraising Promise
commissioned by the Fundraising Standards Board to ensure
its fundraising activities are open and fair.